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End of Life Care

The Living Well for Longer Programme’s End of Life Care work stream is aligned to the national priorities driven by the National Clinical Network for Palliative and End of Life Care. It is facilitating the implementation of Electronic Palliative Care Coordinating Systems across Kent Surrey and Sussex and promoting the implementation of the five key enables identified with the NHS IQ “Transform” programme.
 
The national need for change in End of Life Care has been highlighted through the ‘Ambitions for palliative and end of life care: a national framework for local action for the years 2015 to 2020’ paper, which was produced by the National Palliative and End of Life Care Partnership.
 
The ambitions are as follows:
1. Each person is seen as an individual
2. Each person gets fair access to care
3. Maximising comfort and wellbeing
4. Care is coordinated
5. All staff are prepared to care
6. Each community is prepared to help
 
To achieve these ambitions, the National Palliative and End of Live Care Partnership has identified eight foundations that need to be in place to achieve these ambitions. They are necessary for each and underpin the whole.
 
These foundations are as follows:
- Personalised care planning
- Shared records
- Evidence and information (those important to the dying person)
- education and training
- 24/7 access
- co-design and leadership.
- The need for honest conversation and the importance of joined up care are as important for carers and families as individuals.
- The need for support from, and for, empathetic and competent health and care staff is as important for carers, families and those who are bereaved, as it is for the dying. As is the help that can be given by the communities of which we are part.
 
A clinical advisory group has been established with membership representation from provider and commissioning organisations across Kent, Surrey and Sussex alongside patient, carer, third sector and other relevant members. The group provides a forum for shaping, agreeing and progressing the national drivers for end of life care as well as the local work programme and projects for KSS AHSN.
 
A key element of the work stream to provide a platform for the sharing of national guidelines and local best practice which includes an annual programme of collaborative learning events and an information sharing network.
 
For more information on this workstream, or to find out how you can get involved,
please contact Gill Potts, Senior Programme Manager.